There’s a strong HIV community around you who may understand your experiences and can offer help and resources.
Sussex
Peer support group for carers of people with dementia.
Meet others who understand what you’re going through at our peer support group. The group is run by a facilitator and offers a chance to ask questions, get information and share experiences in a safe and supportive environment.
This group is delivered through face-to-face sessions or online. Second Tuesday of every month, 10.30am–12.30pm.
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A unique and vibrant space which offers social and physical activities based alongside a cafe.
Part of a citywide Ageing Well programme it is the flagship for services for older people. A place where people feel they belong, are valued, and benefit from mutual support.
The Hop 50+ is open Monday – Saturday, with Friday being a dedicated day for people living with the early stages of dementia.
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A voluntary community organisation which runs a weekly lunch club every Friday for people living with or affected by HIV.
They also run a monthly 50+ Supper Club and a befriending scheme.
These are welcoming, safe and supportive spaces for people to meet, socialise, make friends, share a healthy meal and peer support.
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Support workers host monthly peer support events in Brighton for:
- people with dementia and their loved ones
- people experiencing mild cognitive impairment and their loved ones
MindOut is a mental health service run by and for lesbian, gay, bisexual, trans, and queer (LGBTQ) people.
They offer peer support groups and counselling in East Sussex and Brighton and Hove.
The 50+ wellbeing project aims to respond to the support needs of people over 50, reduce social isolation often experienced by older LGBTQ people and develop intergenerational activities for older and younger people to meet, learn and support one another.
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The Orange Clinic is a new approach for the assessment and management of people living with HIV (PLWH) who have cognitive issues or concerns.
The clinic is a collaboration with Memory Assessment Services and Brighton and Sussex Medical School and aims to provide a single point of care for expert, multidisciplinary assessment, management and advice on care for PLWH with concerns about cognitive impairment.
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St Peter’s House offers people living with HIV a safe, non-judgmental and confidential space to share experiences, receive support and advocacy, and develop new skills.
They promote understanding and raise awareness of HIV to encourage testing and reduce discrimination and stigma, working in Surrey and West Sussex.
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The Sussex Beacon provides specialist care and support for people living with HIV.
Our services promote independence and improve health and wellbeing by providing inpatient and outpatient services, and peer support groups.
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Speak Out With Dementia is our online weekly meet-up for LGBTQ+ people living with dementia. We meet every Thursday on Zoom from 5pm to 6pm.
LGBTQ+ Carers Meetup Online meetups over Zoom for LGBTQ+ carers of people living with dementia, on the third Tuesday of each month from 2pm to 3pm.
Worthing Dementia Support Group Monthly peer support sessions in Worthing Dementia Hub on the first Wednesday of each month from 10:30am to 12:30pm.
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THT in Brighton provides a friendly and confidential service that can advise around a wide variety of health and social care issues, as well as offering a welfare advice and counselling services.
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A charity fighting loneliness by creating connections between people through befriending and social prescribing schemes.
Find out moreUK-wide
The Admiral Nurse Helpline offers practical and medical advice and emotional support to people affected by Mild Cognitive Impairment and dementia.
Call 0800 888 6678.
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If you are affected by dementia, worried about a diagnosis or a carer, trained staff are ready to give you the support you need.
Call: 0333 150 3456.
Body & Soul is an innovative charity that uses a comprehensive, community-based and trauma informed approach to address the life-threatening effects of childhood adversity in people of all ages, whether someone has been neglected, abused or stigmatised because of HIV.
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Care Rights UK is your care champion, the charity focused on promoting the rights of people in care.
Email: helpline@carerightsuk.org
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The Elderly Accommodation Counsel helps older people make choices about housing and care.
They run the FirstStop Advice service which offers advice and information to older people, their families and carers about housing and care options.
Call: 0800 377 7070
Email: info@firststopcareadvice.org.uk
Mildmay Hospital provides care and rehabilitation for people with complex and severe HIV-related health conditions, including HIV-associated brain impairment (also known as HIV-Associated Neurocognitive Disorder or HAND).
They use goal-orientated care plans to maximise independence, and improve physical, psychological, cognitive and emotional well-being.
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Positively UK offers peer-led support, advocacy, and information to empower individuals living with HIV to effectively navigate every aspect of their diagnosis, care, and life with HIV.
Find out moreThe Relatives and Residents Association provides information and support to family and friends helping their loved ones to move into a residential home. They can also give advice if you have concerns about care in a residential home.
Call: 0207 359 8136
Find out moreTHT Direct advisers can provide emotional support if you are worried about your sexual health or have concerns about living with HIV. They can help you access services local to you across the UK.
Find out moreAn online community of people living with young onset dementia, their family and friends, as well as professionals working in the health and social care and voluntary sector.
Find out moreFrequently asked questions
Helpful links
Information on other dementias and causes.